December 17, 2022. SAN FRANCISCO, US.
Through the Patient Registry, we expect to increase our understanding of the medical and assistive technology needs of individuals at a larger scale in order to thoughtfully design future clinical trials and neurotechnology devices that meet these individuals’ needs.
Over the last few years, we have worked with patient advocacy groups and a consumer advisory board consisting of individuals with spinal cord injury and their caregivers to guide product development and community engagement.
As an expansion of these efforts, we’ve launched a Patient Registry to learn more about individuals who want to contribute to this initiative and who may be interested in enrolling in future Neuralink clinical trials, when they become available.
Through the Patient Registry, we expect to increase our understanding of the medical and assistive technology needs of individuals at a larger scale in order to thoughtfully design future clinical trials and neurotechnology devices that meet these individuals’ needs.
To apply and participate in the Patient Registry you must be at least 18 years old, meet the age of majority in your state, and be a U.S. citizen or permanent resident with any of the following:
Tetraplegia or tetraparesis (paralysis or severe weakness in all four limbs)
Paraplegia (paralysis in at least two limbs)
Vision loss
Deafness
Aphasia (inability to speak)
Participation in the Patient Registry is voluntary and you have the right to withdraw your consent at any time. To participate, you’ll have to complete the Patient Registry informed consent form, authorize Neuralink to access your medical records, and complete a questionnaire. There is no compensation nor anticipated benefit for participating in the Patient Registry; however, if you meet preliminary eligibility for a future Neuralink clinical trial you may be contacted with more information once it is available for enrollment.
Your participation in the Patient Registry will not enroll you or guarantee enrollment in any future Neuralink clinical trial. Moreover, you don’t need to participate in the Patient Registry in order to participate in future Neuralink clinical trials. Currently, Neuralink does not have any clinical trials available.
We want to build the future of brain-computer interfaces, and would like your help to build that future. With the right team, the potential applications for this technology are limitless!
